Passion Project: Jennifer Parkinson

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Our Live Your Passion campaign spotlights individuals in our community who are living their “passions” on and off the court. Each month, we will highlight one of our passion players, so that they can share their inspirational stories with us.

What is your passion and how do you live it?
My passion is boxing! I embraced the sport after I was diagnosed with Parkinson’s. Learning to box through noncontact boxing techniques has given me strength I never knew I had.

Can you please tell us about Parkinson’s disease?
Parkinson’s is a progressive neurological disease, which affects the person physically, mentally and emotionally. The primary motor symptoms are tremor, muscle rigidity, bradykinesia (slowed movement), and postural instability. Fine motor skills such as writing, buttoning a shirt, or cutting food can be affected, as well as large motor skills such as walking, gait, coordination, & balance.

How does it progress?
The rate of progression and symptoms vary depending on the individual. As PD progresses, the person can become more immobile, relying on assistive devices such as a cane, walker or become wheelchair-bound due to impaired coordination & balance which leads to falls.

Treatments?
There are several medications used to treat the motor symptoms of the disease as well as surgical options, such as Deep Brain Stimulation, which has helped many live a better quality of life. There are therapies available, which can help manage the disease better. Exercise programs such as yoga, dance, tandem biking, & noncontact boxing are significantly improving symptoms of those with Parkinson’s. While there are medications, there is NO CURE for Parkinson’s.

When were you first diagnosed and how did you deal with the diagnosis?
At age 30, I noticed a tremor in my right hand. My daughter was 3 and my son was 6 weeks old. I had to sit on my hand at my 6-week postpartum appointment to try to stop it from moving. I was also an RN, and the tremor began to interfere with my work. As I saw multiple specialists over the next 2 years, other symptoms appeared. My walking became more difficult as my muscles were more rigid and I began dragging my right leg. Finally, at age 32, I saw a neurologist who suspected the diagnosis at our first meeting. It was a relief for me to finally know what I was dealing with, but I really had no idea the challenges ahead for my family and I. The diagnosis came with a harsh outlook. My neurologist told me that day that I would be in a wheelchair and unable to care for my children and myself within 10 years. It was quite difficult to hear and in my mind, unacceptable.

How has the disease impacted your life? 
I attempted to go about life as usual, but my symptoms began to get worse. I was unable to continue working due to muscle rigidity, and daily freezing. Then I became a single mom. I had a choice. I could allow PD to take control of my life, or get up and fight back! In my mind, there was only one choice. I had to fight back! I heard about a program called Rock Steady Boxing, an organization dedicated to training people with Parkinson’s disease to combat the symptoms through noncontact boxing. I kept doing it until my body began to respond to the forced intense exercise. When my mind and body started connecting again, it was life changing. After about a year, my trainer came to me one day and said, “No one would ever know.” I looked like everyone else. My symptoms had significantly improved.

There are 2 other significant issues, which are a daily struggle. Cognitive function has made a significant impact on my daily tasks, making everything more difficult. Through exercise & especially boxing, this has improved significantly, but I also have learned to use technology and visual aids to my advantage. My other struggle is nutrition and GI issues. As GI absorption is now much slower for me, it is important that my nutrition take priority.

How do you try to bring awareness to Parkinson’s?
Telling my story has been so powerful in spreading awareness about Parkinson’s disease. When I talk to other people with PD, they can relate to something in my story about themselves. I want people to realize that there is something they can do when they are diagnosed with Parkinson’s. Life doesn’t stop after the diagnosis, but it does change. For me, it was a new beginning. A life full of new challenges, at times quite overwhelming, but with support, I have been able to tackle them one at a time. It may not be easy. In fact, it will take a lot of hard work, ability to adapt to changes, and an attitude that won’t let you quit or give up, but you can do it! Be willing to accept help and support from family, friends, and build a strong healthcare team to support all of your needs.

What would you like our community to know?
I would like the community to be aware of what Parkinson’s disease is and is not. It is a progressive neurological disease, which is more than just a little shaking. It impacts every aspect of your life, including relationships with a spouse, significant others, and children. It affects people of all ages. Young people with Parkinson’s are struggling to cope with the challenges of this disease, while also trying to raise young children and continue working. Imagine how difficult it is for a 30-year old mother with PD, struggling to roll over and get out of bed in the morning, and then having to get up and get ready for work. I am grateful there are boxing programs like PD Fighters, a noncontact boxing affiliate of Rock Steady Boxing, which I started 2 years ago with Lead Trainer, Josh Ripley and the team at Title Boxing Club Newbury Park. It has been an incredibly successful program and I am honored to coach these amazing fighters. Ultimately, my goal, and the goal of the Michael J Fox Foundation, is to find a cure for Parkinson’s disease. Joining the efforts of Team Fox and raising money for research is vital to reaching that goal. My hope is that one day I can tell my grandchildren what it was like when people used to have Parkinson’s disease.

What does your health and fitness routine look like living with Parkinson’s?
I do some form of exercise daily because exercise is medicine for my mind and body. I am usually in the gym punching the heavy bag, taking a class, outside taking a brisk hike, or going for a morning run. I have to pay close attention to my nutrition. I usually start with a protein shake, which has helped my GI issues tremendously. It is important that I eat healthy meals and snacks, but also that I am consuming enough calories for all the energy I am burning through exercise. I schedule my meals and snacks and time when I eat certain foods, so that it does not interfere with the intake of Sinemet, one of the medications for PD. Drinking water with lemon has really helped me stay hydrated, which is important due to the side effects, particular dry mouth, of certain PD meds.

What advice can you give others living with Parkinson’s or any other condition?
Exercise is key to living a better quality of life with PD. I take medication every day for Parkinson’s as well as incorporating daily exercise. Hitting the bag in the gym, going for a run, or a hike is medicine for my mind and body.

It is also important to have people in your corner who are supportive of your needs. Start by building a strong healthcare team. Many people do not have access to a MDS or are not aware that they exist. The MJFF has created an online tool to connect those with Parkinson’s to Movement Disorder Specialists and valuable resources. At Partners in Parkinsons, you can search for a Parkinson’s disease specialist, attend a webinar or live event in your area, or connect with an advocate.

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A Closer Look at The Michael J. Fox Foundation:
The MJFF is the largest non-profit organization dedicated to finding a cure and improved therapies for Parkinson’s disease. They have raised over $525 million since 2000. Under the MJFF umbrella, exists Team Fox, which is a grassroots fundraising initiative, involving over 2, 500 members. Team Fox allows members to host events and athletic feats, in which all the proceeds go into research. Among Team Fox, are the Team Fox Young Professionals, men and women in their 20’s and 30’s who dedicate their time to raise money for the cause. Currently they have groups all of the country.
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4 Responses
  • angelaslaughter190
    July 9, 2016

    HELLO, My name is Angela Slaughter I was diagnosed of
    Parkinson’s disease in June 2014. I was given medications like levodopa
    to slow down the progress of the disease. I suffered from this disease
    till i read online about a herbal doctor from the ancient city of Benin,
    Nigeria , who has herbal medicines to cure all kinds of diseases
    including Parkinson’s disease. We contacted this herbal doctor via his
    email and bought the Parkinson’s disease herbal medicine from him. He
    sent it to me through courier service and i received it within 5 working
    days. I used the herbal medicine as prescribed and was totally cured me
    of Parkinson’s disease within 2 weeks of usage, all thanks to Dr
    Solution. Contact him via his email, Solutionhealinghome @ gmail. com or
    call/whatsapp his mobile number on and his website: healinghome. webs. com Good luck.

  • joycegregory411
    January 4, 2017

    I decided to share this to help someone out there who is still held with Parkinson’s.
    My dad suffered from parkinson’s for 18 years and we traveled round the world from one hospital to another neurologist and spent thousands of dollars and even got scammed in this process of seeking a cure and the problem still persisted. He acted weird and aggressive and this was so scary. All thanks to Health Herbal Clinic who was able to use there herbal medicine to cure him permanently. He is one of the Honest men out there. If you want to contact them on how to get this herbal medicine or for info just reach them directly on healthherbalclinic@gmail.com or website on http://www.healthherbalclinic.weebly.com Thanks admin.

  • joycegregory411
    January 4, 2017

    I decided to share this to help someone out there who is still held with Parkinson’s.
    My dad suffered from parkinson’s for 18 years and we traveled round the world from one hospital to another neurologist and spent thousands of dollars and even got scammed in this process of seeking a cure and the problem still persisted. He acted weird and aggressive and this was so scary. All thanks to Health Herbal Clinic who was able to use there herbal medicine to cure him permanently. He is one of the Honest men out there. If you want to contact them on how to get this herbal medicine or for info just reach them directly on healthherbalclinic(at)gmail(dot)com or website on www(dot)healthherbalclinic(dot)weebly(dot)com Thanks admin.

  • ScottStell
    March 7, 2017

    (MUST READ: HOW I GOT CURED FROM PARKINSON’S DISEASE)My name is Robert Williams, I thought i should share this here as someone may need this information; I was diagnosed of Parkinson’s disease in February 2015, my doctor told me it has no permanent cure, i was given monoamine oxidase (MAO)-B inhibitors and other medications to ease the situation, this continued till a friend of mine told me about Dr bello from Africa who cured her father of parkinson’s disease and Glaucoma. I contacted this herbal doctor and bought the herbal medicine from him, i received it within 6 days and applied it as prescribed and was totally cured within 7 days of usage. my life is back again! Contact this herbal doctor via his email bellosolutionhome@gmail.com or whatsApp him or call +2348147271779